It is becoming increasingly important for researchers to show how they involve patients and members of the public in research and what difference it makes. Funders, journal publications and public contributors now expect to see evidence of involvement.
The following are tools to record PPI activities and it recommended one of these is used for each activity.
Oxford patient and public involvement reporting tool (I will follow with PDF link).
The impact of patient and public involvement
Hear researchers talk about how patient and public involvement makes a difference to research Sept 2023
Papers evidencing impact of patient and public involvement:
- Brett J, et al. (2014) Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expect. 17(5):637-50. Available at: http://www.ncbi.nlm.nih.gov/pubmed/22809132
- Crocker JC, et al. (2017) Is it worth it? Patient and public views on the impact of their involvement in health research and its assessment: a UK-based qualitative interview study. Health Expect. 20(3):519-28. Available at: http://dx.doi.org/10.1111/hex.12479
- Crocker JC, et al. (2018) Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis. BMJ. 363:k4738. Available at: http://www.bmj.com/content/363/bmj.k4738.abstract
- Russell J, Fudge N, Greenhalgh T. (2020) The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it? Res Involv Engagem. 6:63. Available at: https://www.ncbi.nlm.nih.gov/pubmed/33133636