The NIHR defines public involvement in research as, “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. It is an active partnership between patients, carers and members of the public with researchers that influences and shapes research”. (From NIHR Briefing Notes).
“I would like to strongly encourage all researchers to use the resources on these pages and please do contact Rachel for advice and support.” Professor Helen McShane, Director, Biomedical Research Centre: Oxford.
The policies, guidance and templates have been developed by the Oxford PPIE staff group and public contributors. Researchers and other staff undertaking and supporting PPI can use these to support their PPI activities.
Patient and public involvement policies
Policies have been through several levels of approval and should only be changed with agreement from senior managers within your department.
Patient and public involvement guidance documents
Guidance documents are not to be changed.
Click/tap the preview images to open PDFs in their own windows and/or to download
Other patient and public involvement templates
These template files can be used and adapted as appropriate:
- PPI template 1: Feedback form
- PPI template 2: Confidentiality agreement
- PPI template 3: PPI payment guidance for a specific event
- PPI template 4: Guidance for meetings with PPI contributors
- PPI template 5: Advert for recruiting PPI contributors
- PPI template 6: Terms of Reference (Diversity in Research Group)
- PPI template 7: Privacy Statement (OUH adapted from Oxford Cancer)
Notes about using the templates
– Consider what is most appropriate to your project and adapt accordingly
– Retain intro text
– Replace / include the relevant logo
– Update any references to organisations/department/contacts referred to in the document
– Consider changing the font to a bigger size for public contributors
– Consider whether you can develop the document with PPI contributors (e.g guidance for meetings)
Recording patient and public involvement activities
The following external links are tools to record patient and public involvement activities and it recommended one of these is used for each activity:
Oxford PPI reporting tool (PDF link to follow)