The Researcher Guidance provides up to date information on patient and public involvement to help researchers involve patients and members of the public in their research. Staff and public members in Oxford BRC, the NIHR Applied Research Collaboration and Primary Health Care Sciences Department developed the guidance.
The NIHR defines public involvement in research as, “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. It is an active partnership between patients, carers and members of the public with researchers that influences and shapes research”. (From NIHR Briefing Notes).
“I would like to strongly encourage all researchers to use the resources on these pages and please do contact Rachel or Angeli for advice and support”
Professor Helen McShane, Director, Oxford Biomedical Research Centre
UK Standards for Public Involvement
Developed over three years by a UK-wide partnership, the standards are a description of what good public involvement looks like and encourage approaches and behaviours that are the hallmark of good public involvement such as flexibility, sharing and learning and respect for each other. The standards are for everyone doing health or social care research and have been tested by over 40 individuals, groups and organisations during a year-long pilot programme. They provide guidance and reassurance for users working towards achieving their own best practice.