Videos: Patient and Public Involvement

Professor Shaun Treweek, an expert in ethnicity inclusion from the University of Aberdeen, provides guidance to our researchers on utilising the INCLUDE ethnicity framework and other relevant frameworks to improve trial diversity. This workshop took place on the 07.03.2024 at Blavatnik School of Government, University of Oxford, with the collaboration of NIHR Oxford BRC and NIHR Oxford Health BRC, and facilitation by Open Edge experts. For more information on Patient and Public Involvement, please visit: https://oxfordbrc.nihr.ac.uk/ppi/

Patients and members of the public from the Oxford and Oxford Health BRCs’ Diversity in Research Group provide advice and insights to researchers about working with people from diverse communities. This event in March 2022 was attended by 60 researchers and members of the public.

When we involve patients, carers and other members of the public in our research – including them in the design and delivery of our clinical trials and studies – it improves it and ensures it benefits the people and communities who need it most. It is even more important that the voices of people from diverse and under-served communities are heard when we are designing our studies. In this video, patient and public involvement and engagement contributors explain the value they have brought to research studies.

When we involve patients, carers and other members of the public in our research – including them in the design and delivery of our clinical trials and studies – it improves it and ensures it benefits the people and communities who need it most. It is even more important that the voices of people from diverse and under-served communities are heard when we are designing our studies. In this video, researchers explain how involving patients and members of the public from different communities has added value to their research and made it more effective.

A commitment to provide equal opportunities for all and address any barriers to diverse and inclusive patient and public involvement (PPI) in research seems a non-disputable moral good. But why is unequal access to PPI morally problematic? Is the absence of marginalised or seldom heard groups always wrong? What are the ethical standards that a health researcher should follow when designing, implementing and assessing their PPI strategies? This webinar was presented by Dr Sapfo Lignou.

Jacqueline Birks, Senior Medical Statistician, presented this webinar on 19 March 2021, which provides an introduction to statistics in health and medical research with examples from COVID-19 studies.

This webinar was presented by Dr Nikki Newhouse from the University of Oxford’s Nuffield Department of Primary Care Health Sciences on 25 November 2020. In this presentation, Nikki talks about what qualitative research is (and isn't!) and why it matters for healthcare; she uses examples from her experience to illustrate how we might go about designing good qualitative studies with clear research questions, focusing on best practice in data collection, analysis and presentation. Dr Nikki Newhouse is a postdoctoral researcher in the Nuffield Department of Primary Care Health Sciences at the University of Oxford, where she works as a qualitative methodologist alongside a diverse multidisciplinary team drawn from the clinical trials, engineering, health psychology, human factors and medical communities. Her primary research interest is in human-computer interaction, in particular the development, evaluation and implementation of complex digital interventions to support physical and psychological wellbeing across the lifespan. She uses qualitative and participatory design methods to explore how and why people use (and don’t use) technology 'in the wild'.

This webinar provides an introduction to finding and reading a health research paper. It has been designed for patient and public involvement volunteers. The webinar was presented by Dr Thomas Kabir, who leads the Public Involvement in Research programme at the McPin Foundation, on 3 December 2020.

This webinar was presented by Lucy Abel from the University of Oxford’s Nuffield Department of Primary Care Health Sciences on 18 June 2020. Lucy's presentation provides an introduction to health economics for patient and public involvement contributors.

This webinar was presented by Lucy Abel from the University of Oxford’s Nuffield Department of Primary Care Health Sciences on 18 June 2020. Lucy's presentation provides an introduction to health economics for patient and public involvement contributors.

Our understanding of asthma and other airways diseases has developed significantly in recent years, but this has not necessarily translated into improved treatments for many people living with these conditions. Speaking at the Oxford BRC’s Open Day in May 2019, Prof Ian Pavord, the BRC’s Theme Lead for Respiratory Medicine, explained that the discovery of biomarkers such as eosinophilic airway inflammation should lead to a more stratified and targeted approach to treating patients. Prof Pavord was joined by Beth Noray, an asthma patient who has taken part in clinical trials, who gave her perspective on what participating in research has meant to her and how she views her condition.

Cushla Cooper, Research Manager, Surgical Intervention Trials Unit, University of Oxford, explains how patients and the public have worked with the University to design clinical trials. From children's fingernail injuries to broken legs in adults, patients provide valuable insight into how researchers design and manage research into new surgical techniques.

Despite major research breakthroughs, there are still no treatments that can slow, stop or reverse the progression of Parkinson's. The Monument Trust Discovery Award at the University of Oxford is the largest ever research grant given by Parkinson's UK, the UK's biggest research and support charity for people affected by Parkinson's. This ground-breaking project launched the Oxford Parkinson's Disease Centre, bringing together a world-class team of researchers to better understand Parkinson's to allow everyone to live free from symptoms of the condition. Working together, we're now closer than ever to our goal. We are currently recruiting 1,500 people recently diagnosed with Parkinson's and 300 brothers or sisters of people with Parkinson's .We run research clinics in 11 sites across the Thames Valley, so you won't have to travel far to get involved in our research. Developing tests that can diagnose Parkinson's at an earlier stage, coupled with treatments that tackle the root problems, will provide the best chance of protecting the remaining nerve cells and slowing or stopping Parkinson's. If you have Parkinson's diagnosed in the past three years, or are a brother or sister of someone with Parkinson's, and can travel to one of our research clinics, why not consider taking part in our research? You can find out more about the Discovery project by calling the Dendron NHS Research team on Tel: 01865 234892 or by emailing us at: Parkinsons.Discovery@nhs.net Further information on our study is also available on the Parkinson's UK website http://www.parkinsons.org.uk/discoveryaward For more information about the DeNDRoN research network please visit http://www.dendron.nihr.ac.uk/ If you'd like to find out more about the work of the NIHR (National Institute for Health Research) please click on the link below http://www.nihr.ac.uk/ This film was produced by Oxford Medical Illustration which is a non profit making department of Oxford University Hospitals NHS Trust. If you wish to find out more about their work visit http://www.oxfordmi.nhs.uk

BRC Ethics Fellow, Dr Mark Sheehan provides a stimulating and thought provoking talk and poses questions: Should you involve patients and the public in research? Is it important for society to ensure patients and the public are involved in research at all or some of the stages in the research process?

Hundreds of people visited an open day at the John Radcliffe Hospital about biomedical research taking place in Oxford. The April 21 2016 event showcased the work of the NIHR Oxford Biomedical Research Centre (BRC), a partnership between the Trust and University of Oxford to fund and support research that can benefit the NHS. The BRC was established in 2007 and covers 14 themes including cancer, diabetes, genetics, infection and vaccines.

Participants such as Professors Brian Cox, Alice Roberts and Robert Winston give a taste of the diverse events and experiences on offer at 'the science community's Glastonbury'.