The NIHR Oxford Biomedical Research Centre’s (Oxford BRC) patient and public involvement and engagement (PPIE) strategy 2022-2027 is now finalised and can be viewed from our PPIE Strategy page.
The strategy aims to deliver excellent PPIE in collaboration with researchers and PPIE contributors. Excellent PPIE improves research and drives all aspects of involvement in research, including participation.
The Oxford BRC vision for patient and public involvement and engagement is:
“Patients, their families and carers, and the public from all communities are involved in research as valued partners to improve the health and well-being of all society.”
The strategic priorities are:
- People from all communities are supported to be involved, especially under-represented communities who are not usually involved.
- Researchers and staff undertaking research are given guidance and support to deliver high quality PPIE.
- The value of health research and involvement is communicated effectively.
- PPIE knowledge and capacity are increased through work with local, regional and national organisations.
The PPIE Strategy was co-produced with PPIE contributors and researchers and is underpinned by the UK Standards for Public Involvement. The first draft was shaped by a comprehensive review and feedback from new PPIE contributors. Improvements to the strategy followed nearly 90 public consultation responses.
New PPIE contributors from communities not usually involved (e.g. minority ethnic and LGBT+ communities, and young adults), contributed a total of 200 hours to develop the strategy.
They reviewed materials and other activities and made recommendations on how research is communicated so people from all communities, especially those currently under-represented, see the value of getting involved and know how to do so. A film about their work can be viewed below.
The public consultation feedback reinforced the review findings. However, we realised some areas needed to go further and amended the strategy to include:
- Only language that is easily understood (e.g.”under-represented” rather than “under-served”) and an easy read version.
- A clearer message on the value of PPIE.
- Practical guidance on how to include people (e.g. translation of materials).
- Emphasis on working with charities and patient groups.
- Improved feedback to PPIE contributors on the value of their contribution.
- A co-produced implementation plan with SMART objectives will deliver the strategy.