Patient and Public Involvement (PPI) is a partnership between patients, members of the public (including carers and patients’ families), health researchers and clinicians to make the research process more effective and improve future patient care.
Please find links to the various patient and public involvement groups and ways you can get involved.
The groups focus their research on the musculoskeletal theme encompassing inflammatory joint disease, trauma, degenerative joint disorders and rare bone diseases across Oxfordshire.
For further information please contact Louise Hailey louise.hailey@ndorms.ox.ac.uk
Oxford Patient Engagement Network for Arthritis and Musculoskeletal Conditions (OPEN ARMS)
Home — Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences (ox.ac.uk)
OPEN ARMS, the Oxford Patient Engagement Network for Arthritis and Musculoskeletal Conditions, is a group of patients, family members, carers, and members of the public (referred to as patient partners) who work with medical researchers from the University of Oxford to help them develop, carry out and communicate their research.
Centre for Rehabilitation Research in Oxford (RRIO)
The Centre for Rehabilitation in Oxford undertake high quality research into how exercise and physiotherapy can be used to support the rehabilitation of patients with acute musculoskeletal injuries or chronic conditions.
RUDY Study
rudy.ndorms.ox.ac.uk/who_we_are
Rudy is a study in Rare diseases. Headed up by a research team at the University of Oxford, Rudy aims to transform clinical care for participants through patient driven research. Some (but by no means all) of the diseases covered in the study include Multiple myeloma, Osteogenesis imperfecta, Fibrous dysplasia of bone, X-linked hypophosphatemia, Granulomatosis with polyangiitis, Sickle cell anaemia, Eosinophilic granulomatosis with polyangiitis, Giant cell arteritis and Polymyalgia rheumatica.
Oxford Trauma and Emergency Care
ndorms.ox.ac.uk/Oxford-Trauma-and-Emergency-Care/Patient-and-Public-Involvement
PPI partners, clinicians and researchers in the Oxford Trauma and Emergency Care group have worked together on an equal footing to generate a list of the most important research questions for recovery from traumatic injury.
Research into Inflammatory Arthritis Centre (RACE)
race-gbn.org/patientinvolvementinresearch
The RACE centre has two main overarching research aims:
What is the cause of Rheumatoid Arthritis and related types of inflammatory arthritis?
Why do some patients fail to respond to treatment?
To meet the research aims of the RACE centre, and to ensure that patients have a say in the research that may benefit them patient involvement groups have been established
Oxford Clinical Trials Research Unit (OCTRU)
OCTRU is a registered United Kingdom Clinical Research Collaboration (UKCRC) Clinical Trials Unit. Based within the University of Oxford, the unit works closely with the Oxford Trauma, Oncology Clinical Trials Office, Surgical Intervention Trials Unit, Experimental Medicine and Rheumatology and Rehabilitation Research in Oxford groups. OCTRU aims to design, conduct, and report in both early and later phase clinical trials predominately in surgery, musculo-skeletal sciences and oncology.
The Centre for Osteoarthritis Pathogenesis Versus Arthritis Centre (OA)
The Centre for Osteoarthritis Pathogenesis Versus Arthritis aims to develop new treatments for this disabling condition, improving healthcare and transforming people’s lives. The centre brings together researchers and clinicians from across the University of Oxford including the Kennedy Institute of Rheumatology, the Botnar Research Centre, and the Nuffield Orthopaedic Centre, as well as Queen Mary University of London.