Patient and Public Involvement (PPI) Strategy
We want all patients seen within Oxford’s hospitals to know about the research we do – from trials of new treatments to studies designed to help find out the causes of and ways to prevent disease – and how they can volunteer to take part. But as well as considering participating in that way, we would like you to help us by, for example:
- advising us on patient priorities for new research
- advising us on what we need to measure when doing research so that the answers we get are relevant to patients
- helping us to plan and run studies so that patients want to join them
- helping us explain studies to patients (for example in information leaflets) in ways that make them fully accessible
- helping us make applications for research funding so that potential funders know that we are addressing patients’ priorities
- helping us to monitor studies, telling other patients about them and communicating new research findings to the public
Working with our PAIR (Patients Active in Research) group we are currently revising the PPI strategy for the second half of the BRCs lifetime, until 2017. More details will be posted on this website once are plans are finalised.
In the meantime, we have three major active PPI projects: a research fellow who is assessing the impact of PPI; a growing suite of James Lind Alliance priority setting partnerships, which enable patients, carers and clinicians to identify what research is most important to them (find out more here: www.jla.org) and we are working with several partners to set up a dedicated website – with and for patients – where opportunities for PPI in the Thames Valley will be highlighted. You can read more about these activities, and about our two BRC fellows – in health experience and ethics
If you’d like to see and hear patients from Oxford and elsewhere talking about their experiences of research, you can go to the health information website HealthTalkOnline.