Patient and Public Involvement (PPI) Strategy
During 2013/14 we set up our PAIR (Patients Active in Research) group, a mix of patients and professionals, to guide us. We have worked closely with this group as well as a large range of other partners in the region and further afield, to agree a strategy for patient and public involvement (PPI) to take the BRC and our related Biomedical Research Unit (BRU) to the end of their current term in 2017. See the BRC-U PPI Strategy 2014-2017
In devising this strategy our aim has been to focus on heeding best practice in PPI where it is known while developing activities to help our research themes deliver their aims. Furthermore, recognising the huge and fast-growing world of PPI, we have focused on areas not covered by others while building partnerships where beneficial.
The strategy details plans for:
- Strategic Partnerships – including – crucially – weaving PPI through our work with the drug and biotech industries
- Developing PPI across the research cycle
- The meeting point of involvement, engagement and participation – including a new PPI website
- Review, monitoring and governance of PPI
- Sharing good practice, knowledge, skills, resources
- Growing the evidence base for what works in PPI
By 2017 we thus hope to have embedded a PPI programme that helps deliver the OxBRC/U aims while complementing activity in other organisations locally and further afield.
Engagement activities set out in the strategy will help ensure that patients seen within our hospitals know about the research we do – from trials of new treatments to studies designed to help find out the causes of and ways to prevent disease – and how they can take part.
But crucially, we also hope this strategy will ensure they also participate in our work across the research cycle, from setting priorities for new research to helping us monitor studies, tell other patients about them and communicate new research findings to other patients and the public.
In summer 2015 we finalised the payment policy that enables us to offer payment to all patient and public members of PAIR (see PAIR PPI PAYMENT POLICY 2015). We will in due course re-advertise PAIR membership so that those who might have been deterred from applying when we were unable to offer payment can do so now. We are also working with themes and working groups across the BRC and BRU to ensure that they too budget for PPI payments and are able to act to a similar policy once they have funds in place.