A new project to help those affected by spinal cord injuries shape the research agenda has launched its website.
Supported by the Oxford Biomedical Research Centre, The James Lind Alliance ‘Spinal Cord Injury Priority Setting Partnership’ will work with people with Spinal Cord Injury, Cauda Equina Syndrome and Transverse Myelitis, along with their carers, health and social care professionals and the wider community.
Through this work, it will identify and prioritise the most important research questions for these medical conditions, generally referred to as ‘Spinal Cord Injury’ (SCI).
The partnership, which is based at the Stoke Mandeville Spinal Foundation, will produce the top 10 most important research questions to enable researchers to address topics that are important to the wider SCI community.
An initial public survey, to gather research questions and important issues in this area, will be launched on September 9 and the prioritisation process will take place in the New Year. See the website for further details.
The James Lind Alliance (JLA) is a non-profit making initiative which was established in 2004. It brings patients, carers and clinicians together to identify and prioritise research questions. The JLA work is now managed by the National Institute for Health Research (NIHR) Evaluation, Trials and Studies Coordinating Centre (NETSCC).