Patient and Public Involvement (PPI) takes many forms, but the objective is always the same. Only by carrying out our research with patients can we ever hope to do work that is meaningful and of high quality. Medicine and research are a genuine partnership between patients, doctors and scientists.
If you wanted to get involved, what form might this take? It could involve:
- Reviewing our patient information sheets for clinical trials. You tell us – have we written them in a language that is easy to understand or is it still too full of jargon?
- Participating in Trial Steering Committees. You can join – help review what trials we run in Oxford and how we run them.
- Patient information events. Want to know more? Just turn up and hear about the research we carry out. Want to help? Bring your skills into the mix, from organisation to help with social media dissemination or even baking a cake to bring along to share at one of our events.
- Research priorities. We are committed to integrating patients’ views into the research we carry out. This can be done through some of our James Lind Alliance Priority Setting Partnerships in blood transfusions, rare anaemias and bleeding disorders.
- Training in PPI. There are lots of free training sessions for anyone who wants to get more skills in how to participate in PPI.