The BRC provides extensive resources to help you with PPI. The downloadable documents below are available to everyone.
If your project is funded by Oxford BRC, additional resources may be available.
- For project-related, administrative or practical help contact the PPI lead for your own theme.
- For general methodological advice contact the PPI Manager at the PHWI theme, email@example.com.
Click the flowchart for directions to the most appropriate resources.
1. A Researcher’s Guide to PPI
A Researcher’s Guide to PPI is a 30-page PDF guide based on the experiences of health and medical researchers, patients and members of the public.
2. Briefing notes and summary leaflet
We have created a set of “briefing notes” in the form of frequently asked questions, such as “When can I do PPI in the research cycle?”, “How and what do I pay patients who get involved?” and “How do I write information for patients?”. These are updated as we gather new questions from you, and will signpost existing external resources such as the NIHR Research Design Service and INVOLVE where appropriate. You can find these on the PPI briefing notes for researchers page.
We have also produced a short leaflet for researchers, Patient and Public Involvement (pdf), which explains what PPI is, outlines some of the benefits and provides information about when and how to do PPI.
3. Personal guidance
We are always happy to offer one-to-one support about how to incorporate PPI into your work. Contact us directly to arrange a meeting or have an email or phone discussion – email firstname.lastname@example.org. As part of this conversation, we may subsequently introduce you to a suitable member of our Patients Active in Research group who can offer further insights.
4. Patients Active in Research (PAIR) website
The patientsactiveinresearch.org.uk website is where you can post opportunities for people who live in the Thames Valley to get involved. There are circa 200 people registered who receive e-mails with new opportunities on Fridays. In addition, people who are not registered can drop in to the site, and search for opportunities. Anyone interested in your opportunity can then contact you directly. You can post opportunities here: Post a Project Online. Also see Case Studies of PPI carried out by researchers. Please note, if you are looking to recruit participants for trials, the place to post that opportunity is on the OUH website: ouh.nhs.uk/research/patients/get-involved.aspx
5. Payment policy and guidance on writing lay summaries
A payment policy (two versions – one to guide researchers and one to be adapted and provided to members of the public) and a guidance note on writing lay summaries for clinical trials. These can be found here:
6. Information about James Lind Alliance (JLA) Priority Setting Partnerships (PSPs)
JLA PSPs bring together patients, carers and health and social care professionals to agree the priorities for future research in a particular health topic. Over the last few years the BRC has supported a number of PSPs across a range of health topics – you can see more about the JLA here jla.nihr.ac.uk and you can find the Oxford-supported PSP websites here ouh.nhs.uk/research/patients/priority-setting-partnerships/default.aspx. This approach is considered to be the “gold standard” for priority setting, and once finalised, the priorities are publised online. When you have an early stage research idea, you can check the JLA topics and reference in your grant application which priority of which PSP your research addresses.
7. PPI blog
See the Patient Involvement blog in the PPI section of this website.
8. Healthtalk modules
The Healthtalk website includes people’s experiences of being involved with research healthtalk.org/peoples-experiences/medical-research/patient-and-public-involvement-research/topics and researchers’ experiences of patient & public involvement healthtalk.org/peoples-experiences/medical-research/researchers-experiences-patient-public-involvement/topics, carried out by Louise Locock, the BRC Health Experiences Fellow. These are a useful resource for you to find out: what people said about their reasons for getting involved, what activities and tasks are required, and the value of patient and public involvement in research; and
what researchers said about their reasons for involving people, the impact it has made, what some of the problems have been, and how involvement can be better implemented and supported.
9. PIRRIST: Developing a Patient and public involvement Intervention to enhance Recruitment and Retention in Surgical Trials
This project, led by Joanna Crocker, Oxford BRC Research Fellow in PPI Impact Assessment, has developed guidance for Chief Investigators with the aim of enhancing recruitment and retention in surgical trials; the guidance is also applicable to other types of UK-based clinical trials. phc.ox.ac.uk/research/health-experiences/research-projects/developing-a-patient-and-public-involvement-intervention-to-enhance-recruitment-and-retention-in-surgical-trials-pirrist