The Infections in Oxfordshire Research Database (IORD) is a major component of the Antimicrobial Resistance and Modernising Microbiology Theme, with close links to the Modernising Medical Microbiology Consortium (lead locally by PIs Professors Derrick Crook & Tim Peto). A patient-centred data store covering about 1% of England, it includes data on infection, microbial isolation, hospitalisation and illness severity.
The goals of IORD are as follows:
1. To improve the management of infections and potentially infection-related episodes in UK hospitals.
(a) trends in incidence of different bugs in Oxfordshire, within and outside the hospital: are new bugs starting to cause problems?
(b) predictors of infection with different bugs: what increases the risk of developing infections?
(c) severity of infection with different bugs, including adverse outcomes: are some infections becoming more or less serious?
3. To use this data together with research data from detailed studies (eg gene strain typing, diagnostics), to understand more fully how and why particular strains of a bug become more dangerous (or “virulent”).
IORD includes completely anonymised information from two different sources;
1. Oxford University Hospitals NHS Trust Safety System (OUH PSS). This is an NHS database used for clinical service, it includes the patient administration system (PAS), pathology (microbiology, virology, laboratory), and infection control (ICE) databases. The PAS data is from both the Oxford University Hospitals NHS Foundation Trust.
2. Research data generated through activities of the Antimicrobial Resistance and Modernising Medical Microbiology Theme of the Oxford NIHR Biomedical Research Centre, Oxford.
What does anonymised mean?
Within the 2 different data sources individuals are identified by hospital numbers, and samples (and bugs!) by laboratory identifiers. Every day data is taken from these sources, and the personal identifiers are removed and replaced with a single identifier, such as “8619744”. No names or addresses, hospital or NHS numbers are therefore used or stored in IORD.
If you have any concerns regarding your data or your relatives’ data being used for research please email firstname.lastname@example.org to discuss this with a member of the team.
Understanding Patient Data
This work uses data provided by patients and collected by the NHS as part of their care and support. Using patient data is vital to improve health and care for everyone. There is huge potential to make better use of information from people’s patient records, to understand more about disease, develop new treatments, monitor safety, and plan NHS services. Patient data should be kept safe and secure, to protect everyone’s privacy, and it’s important that there are safeguards to make sure that it is stored and used responsibly. Everyone should be able to find out about how patient data is used.