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Patient and Public Involvement

You are here: Home > Getting involved with research > Public engagement for researchers

Public engagement for researchers

What’s the difference between engagement, involvement and participation?

  • Engagement – sharing information and knowledge about research with the public.
  • Involvement – involving the public in designing, planning and conducting research.
  • Participation – recruiting members of the public to take part in studies and clinical trials.

The purpose of engagement, as we define it, is to inform the public about our research and inspire them to take part in or get involved in research, in whatever way is most appropriate to them.

Patient and Public Involvement (PPI) is defined by INVOLVE as “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them”.

Why does public engagement matter?

The Oxford BRC is publicly funded and therefore it is vital that we communicate the importance and relevance of our research. Public engagement shows society the value of our work and it can encourage a greater appreciation and trust of research organisations, based on an improved understanding of how research is planned, conducted and funded.

Additionally, public engagement has tangible benefits for those we engage with. It can empower people, helping patients to understand their conditions better and make better-informed decisions about their health. It can also inspire the next generation, not only to work in research but also to become the research volunteers of the future.

Resources

The following websites are all excellent places to start for information about public engagement training, funding and best practice.

University of Oxford Medical Sciences Division

Training for Researchers and Dphil Students

University of Oxford Public Engagement with Research

National Coordinating Centre for Public Engagement

Oxford Sparks

UK Research and Innovation

Find the latest updates of public engagement news

Support

The BRC can offer additional support for researchers conducting public engagement projects, from help with booking venues to advising on an evaluation plan for your activity. Please contact Roy Probert (Senior Communications Manager) directly to discuss your requirements further.

Email: roy.probert@ouh.nhs.uk

Tel: 01865 743341

Post an opportunity for patient and public involvement

PPI RESEARCHER GUIDANCE

  • Section 1 – Foreword and Introduction
    • Foreword by Professor Gavin Screaton
    • Introduction
  • Section 2 – What is Patient and Public Involvement?
    • Patient and public involvement, engagement and participation definitions
    • Why involve the public in research?
    • Funding body requirements: NIHR, UKRI and Wellcome
    • Academic literature requirements
    • PPI strategies
    • Standards and best practice
    • Why patients and the public want to get involved
    • Involving people from diverse and ‘under-served’ groups
    • Ethical approval
    • Costing and funding patient and public involvement
  • Section 3 – PPI and the Research Pathway
    • The research cycle
    • PPI opportunities in the research pathway
    • Case studies across the research pathway
  • Section 4 – PPI in Practice
    • Recruiting patients and the public
      • Deciding who to involve
      • PPI groups and recruitment websites
      • Advertising for PPI contributors
      • Where to advertise
      • Template for advertisement for PPI contributor
    • Communicating with patients and the public
      • Writing in plain English
      • Social Media
    • Support and guidance for patients and the public
      • Role descriptions and interviews
      • Templates for working agreements
      • Induction and welcomes
      • Training and support for PPI contributors
      • Thanking and giving feedback to PPI contributors
      • Payment for PPI contributors
      • Benefits advice and support
    • Guidance for meetings and other PPI activities
      • Guidance for online meetings
      • Guidance for in-person meetings
      • Terms of Reference
      • Consent to share personal information
  • Section 5 – PPI Resources for Researchers
    • PPI leads and coordinators
    • PPI groups, Oxford
    • Training and support
    • Recruitment websites
    • Organisations supporting PPI in research, nationally
    • Funding opportunities supporting PPI in research

Public engagement for researchers

  • Public engagement for researchers
    • Public Engagement Case Study – Breathe Oxford at the Royal Society Summer Science Exhibition
    • Public Engagement Case Study – GenExpressID study: working with a patient interest group

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