The BRC provides extensive resources to help you with PPI. The downloadable documents below are available to everyone.
If your project is funded by Oxford BRC, additional resources may be available.
- For project-related, administrative or practical help contact the PPI lead for your own theme.
- For general methodological advice contact the PPI Manager: email@example.com.
For guidance on carrying out PPI activities during the COVID-19 pandemic, the following resources may be helpful:
Flowchart with directions to the most appropriate resources
1. A Researcher’s Guide to PPI
A Researcher’s Guide to PPI is a 30-page PDF guide based on the experiences of health and medical researchers, patients and members of the public.
2. Briefing notes and summary leaflet
We have created a set of “briefing notes” in the form of frequently asked questions, such as “When can I do PPI in the research cycle?”, “How and what do I pay patients who get involved?” and “How do I write information for patients?”. They also signpost to external resources such as those provided by the NIHR Research Design Service and INVOLVE. You can find these on the PPI briefing notes for researchers page.
We have also produced a short leaflet for researchers, Patient and Public Involvement (pdf), which explains what PPI is, outlines some of the benefits and provides information about when and how to do PPI.
3. Personal guidance
We are always happy to offer one-to-one support about how to incorporate PPI into your work. Contact us directly to arrange a meeting or have an email or phone discussion – email firstname.lastname@example.org.
4. PPI listings
You can post opportunities for people who live in the Thames Valley region (see map of the Thames Valley here) to get involved with research here. Just over 200 people have signed up to receive a weekly email bulletin, and people who aren’t registered can see opportunities here – they can then contact you directly. This is designed to be for PPI opportunities, not for recruitment to trials (you can do that here).
5. Payment policy
We have developed a payment policy for PPI in line with the INVOLVE recommendations.
6. Guidance for researchers on writing for a lay audience
Advice on how to write a lay summary.
Lay Summary Guidance_October 2019 (pdf)
7. James Lind Alliance (JLA) Priority Setting Partnerships (PSPs)
JLA PSPs bring together patients, carers and health and social care professionals to agree the priorities for future research in a particular health topic. Over the last few years the BRC has supported a number of PSPs across a range of health topics – you can see more about the JLA here jla.nihr.ac.uk and you can find the Oxford-supported PSP websites here ouh.nhs.uk/research/patients/priority-setting-partnerships/default.aspx.
8. Healthtalk modules
The Healthtalk website has videos of people’s experiences of being involved with research healthtalk.org/peoples-experiences/medical-research/patient-and-public-involvement-research/topics and researchers’ experiences of PPI healthtalk.org/peoples-experiences/medical-research/researchers-experiences-patient-public-involvement/topics. These are a useful resource for you to find out: what people said about their reasons for getting involved, what activities and tasks are required, and the value of PPI in research; and what researchers said about their reasons for involving people, the impact it has made, what some of the problems have been, and how involvement can be better implemented and supported.
9. PIRRIST: Developing a Patient and Public Involvement Intervention to Enhance Recruitment and Retention in Surgical Trials
This project, led by Joanna Crocker, Oxford BRC Research Fellow in PPI Impact Assessment, has developed guidance for Chief Investigators with the aim of enhancing recruitment and retention in surgical trials; the guidance is also applicable to other types of UK-based clinical trials. phc.ox.ac.uk/research/health-experiences/research-projects/developing-a-patient-and-public-involvement-intervention-to-enhance-recruitment-and-retention-in-surgical-trials-pirrist