The BRC provides extensive resources to help you with patient and public involvement activities.
- For guidance on carrying out patient and public involvement activities during the COVID-19 pandemic, the following resources may be helpful:
1. Getting started with patient and public involvement
We have put together some information to help you get started. This is in the form of frequently asked questions, such as “When can I do PPI in the research cycle?”, “How and what do I pay patients who get involved?” and “How do I write information for patients?”. They also signpost to external resources such as those provided by the NIHR Research Design Service and INVOLVE. You can find these on the Getting started with patient and public involvement page.
We have also produced a short leaflet for researchers, Patient and Public Involvement (pdf), which explains what PPI is, outlines some of the benefits and provides information about when and how to do PPI.
2. Personal support
We are always happy to offer one-to-one support about how to incorporate patient and public involvement into your work. Contact us directly to arrange a meeting: firstname.lastname@example.org or email@example.com.
3. Patient and public involvement opportunities
You can post opportunities for people who live in the Thames Valley region (see map of the Thames Valley here) to get involved with research here. Over 200 people have signed up to receive a weekly email bulletin, and people who aren’t registered can see opportunities here – they can then contact you directly. This is designed to be for patient and public involvement opportunities, not for recruitment to trials (you can do that here).
4. Payment policy
We have developed a payment policy for patient and public involvement in line with guidance from NIHR Centre for Engagement and Dissemination.
5. Guidance for researchers on writing for a lay audience
Advice on how to write a lay summary.
Lay Summary Guidance_October 2019 (pdf)
6. A Researcher’s Guide to Patient and Public Involvement
A Researcher’s Guide to Patient and Public Involvement is a 30-page PDF guide based on the experiences of health and medical researchers, patients and members of the public.
7. Healthtalk videos
The Healthtalk website has videos of people’s experiences of being involved with research healthtalk.org/peoples-experiences/medical-research/patient-and-public-involvement-research/topics and researchers’ experiences of patient and public involvement healthtalk.org/peoples-experiences/medical-research/researchers-experiences-patient-public-involvement/topics. These are a useful resource for you to find out: what people said about their reasons for getting involved, what activities and tasks are required, and the value of patient and public involvement in research; and what researchers said about their reasons for involving people, the impact it has made, what some of the problems have been, and how involvement can be better implemented and supported.