PPI leads and coordinators
The PPI leads and co-coordinators from the Thames Valley and South Midlands NIHR organisations (e.g. ARC Oxford Thames Valley, Oxford and Oxford Health BRCs) work collaboratively with the University Medical Sciences department PPI leads. They provide one-to-one support to help you understand how to incorporate PPI into a research project or put you in touch with departmental PPI professionals. They can also signpost to other resources which are more specialised, so please do contact them directly.
| Name | Organisation and/or Oxford BRC themes | Contact details |
|---|---|---|
| Alexandra Almeida | BRC Oxford Health | alexandra.almeida@psych.ox.ac.uk |
| Rachel Taylor | BRC Oxford | rachel.taylor@ouh.nhs.uk |
| Polly Kerr | Medical Sciences Division – Primary Health Care Sciences | polly.kerr@phc.ox.ac.uk |
| Claire Schwartz | ARC Thames Valley | claire.schwartz@phc.ox.ac.uk |
| Louise Hailey | NDORMS | louise.hailey@ndorms.ox.ac.uk |
| Catriona Gilmour-Hamilton | Haematology | catriona.gilmour-hamilton@ouh.nhs |
| Carla Wright | Anti-microbial resistance and Modernising Microbiology | carla.wright@ndm.ox.ac.uk |
| Liaquat Khan, Raquel Lopez Ramon and Nick Byard | Oxford Vaccine Centre PPI Group/ Life-saving Vaccines Theme | ovc-ppi@medsci.ox.ac.uk |
| Sinead Wright | Diabetes and Metabolism Theme and OCDEM | sinead.wright@ocdem.ox.ac.uk |
| Sophia Wilkinson | Clinical Informatics and Big Data theme / NDPH | sophia.wilkinson@ndph.ox.ac.uk |
| Anisa Hajizadeh | Obesity, Diet and Lifestyle theme | anisa.hajizadeh@phc.ox.ac.uk |
| Alexandra Almeida | Neuroscience, Ethics and Society Young People’s Advisory Group https://begoodeie.com/ypag/ | alexandra.almeida@psych.ox.ac.uk |
PPI groups, Oxford
Current PPI contributor groups for the University of Oxford, University of Oxford Hospitals and NIHR organisation are listed below, they do change and are expanding.
The PPI Groups are there to offer support, advice and guidance at any stage of the research pathway and are an invaluable resource for researchers. Please contact the link person directly.
Training and support
Resources listed below provide information on training courses that are available for researchers or support of an individual nature.
| Organisation | Purpose | Contact details |
|---|---|---|
| Learning for Involvement | Offer resources and training for researchers upcoming courses on their website | https://www.learningforinvolvement.org.uk/find-training/ |
| NIHR Research Design Service | offer support for grant specific PPI through their request support service | https://www.rds-sc.nihr.ac.uk/request-support/ |
| NIHR School for Primary Care Research | List training opportunities here including non NIHR | https://www.spcr.nihr.ac.uk/PPI/resources-for-researchers/training-for-involvement-and-engagement |
Recruitment websites
These websites are used by researchers to recruit Patient & Public Involvement contributors.
| Organisation | Coverage | Contact details |
|---|---|---|
| NIHR Oxford BRC PPI mailing list | Covers the Thames Valley run by BRC Oxford. 200+ people signed up to weekly email bulletin. People not registered can see opportunities here too | https://oxfordbrc.nihr.ac.uk/ppi/researchers-post-opportunities/ |
| People in Research | National and run by NIHR. | http://www.peopleinresearch.org/ |
| Voice Global | UK and international, with public, patients and carers who contribute to research | https://www.voice-global.org/ |
Organisations supporting PPI in research, nationally
| Organisation | Purpose | Contact details |
|---|---|---|
| James Lind Alliance | Brings patients, carers and clinicians together in Priority Setting Partnerships to identify top 10 unanswered questions about effects of treatment. | https://www.jla.nihr.ac.uk/ |
| Health Research Authority NHS | The HRA protects and promotes the interests of patients and the public in health and social care research. | https://www.hra.nhs.uk/ |
| Healthtalk | Provides online information about health issues, by sharing people’s real-life stories collected by academic researchers. Includes experiences on PPI. | PPI Contributor’s views Researchers’ views |
| Medical Research Council Clinical Trials Unit -UCL | Focus on infectious diseases and cancer, and the translation of scientific research into patient benefits. Designs and conduct innovative and challenging clinical trials with public involvement | https://www.ctu.mrc.ac.uk/ |
| McPin Foundation | Focuses on mental health research by putting the lived experience of people affected by mental health problems at the heart of research methods and the research agenda. | https://mcpin.org/about-us/our-vision-and-beliefs/ |
| NIHR | Section on engagement and participation in research for professionals emphasising the need for involvement. | https://www.nihr.ac.uk/health-and-care-professionals/engagement-and-participation-in-research/ |
| Shaping Our Lives | National organisation and network of 430 + user-led groups, service users and disabled people committed to inclusive involvement and specialise in the research and practice of involving diverse communities in policy, planning and delivery of services. | https://www.shapingourlives.org.uk/ |
Funding opportunities supporting PPI in research
| Organisation | Scheme | Link |
|---|---|---|
| NIHR – Research Design Service South Central | RDS provides design and methodological support to researchers applying for funding from NIHR and other national funding programmes, including help with planning and developing a PPI strategy for your grant application. is available via RDS South Central which covers Oxford. They have a small amount of funding for pre-submission PPI activities. | https://www.rds-sc.nihr.ac.uk/information-for-researchers/ https://www.rds-sc.nihr.ac.uk/request-support/ |
| NIHR- School for Primary Care Research | Small grants scheme will be live from 19th September 2022. Open to researchers in the NIHR School for Primary Care Research only. | https://www.spcr.nihr.ac.uk/PPI/spcr-PPIE-funding-calls |
| Public Engagement team at the University | The public engagement team list grant opportunities on their website which may be applicable for public involvement. | https://www.ox.ac.uk/research/public-engagement/support-researchers |
| National Coordinating Centre for Public Engagement | This funding is for public engagement which could support public involvement. | Health and life sciences funding | NCCPE (publicengagement.ac.uk) |
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