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Patient and Public Involvement

You are here: Home > Getting involved with research > Patient and public involvement (PPI) Researcher Guidance > Section 5 – PPI Resources for Researchers
PPI Researcher Guidance

Section 5 – PPI Resources for Researchers


PPI leads and coordinators

The PPI leads and co-coordinators from the Thames Valley and South Midlands NIHR organisations (e.g. ARC Oxford Thames Valley, Oxford and Oxford Health BRCs) work collaboratively with the University Medical Sciences department PPI leads. They provide one-to-one support to help you understand how to incorporate PPI into a research project or put you in touch with departmental PPI professionals. They can also signpost to other resources which are more specialised, so please do contact them directly.

NameOrganisation and/or Oxford BRC themes  Contact details
Alexandra AlmeidaBRC Oxford Healthalexandra.almeida@psych.ox.ac.uk
Rachel TaylorBRC Oxfordrachel.taylor@ouh.nhs.uk 
Polly KerrMedical Sciences Division – Primary Health Care Sciencespolly.kerr@phc.ox.ac.uk
Claire SchwartzARC Thames Valley  claire.schwartz@phc.ox.ac.uk  
Louise Hailey  NDORMS  louise.hailey@ndorms.ox.ac.uk
Catriona Gilmour-Hamilton  Haematology  catriona.gilmour-hamilton@ouh.nhs
Carla WrightAnti-microbial resistance and Modernising Microbiology  carla.wright@ndm.ox.ac.uk
Liaquat Khan, Raquel Lopez Ramon and Nick ByardOxford Vaccine Centre PPI Group/ Life-saving Vaccines Theme  ovc-ppi@medsci.ox.ac.uk
Sinead WrightDiabetes and Metabolism Theme and OCDEM  sinead.wright@ocdem.ox.ac.uk
Sophia WilkinsonClinical Informatics and Big Data theme / NDPH  sophia.wilkinson@ndph.ox.ac.uk
Anisa HajizadehObesity, Diet and Lifestyle theme  anisa.hajizadeh@phc.ox.ac.uk
Alexandra AlmeidaNeuroscience, Ethics and Society Young People’s Advisory Group https://begoodeie.com/ypag/  alexandra.almeida@psych.ox.ac.uk    

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PPI groups, Oxford

Current PPI contributor groups for the University of Oxford, University of Oxford Hospitals and NIHR organisation are listed below, they do change and are expanding.

The PPI Groups are there to offer support, advice and guidance at any stage of the research pathway and are an invaluable resource for researchers. Please contact the link person directly.

Name of groupContact
Cardiothoracic Public Partnership Group (PPG)jo.wilson@ouh.nhs.uk  
Diabetes Reference Panel (DRP) and Diabetes Online Review Group (DORG)BRC@ocdem.ox.ac.uk
Diversity in Research Grouprachel.taylor@ouh.nhs.uk alexandra.Almeida@psych.ox.ac.uk
NeurOx Young People’s Advisory Group https://begoodeie.com/ypag/alexandra.almeida@psych.ox.ac.uk    
Modernising Medical Microbiology Group (MMM)carla.wright@ndm.ox.ac.uk
Nuffield Department of Population Health Public Advisory Panel (ox.ac.uk)anne.whitehouse@ndph.ox.ac.uk sophia.wilkinson@ndph.ox.ac.uk
Oxford Cancer Research Patient and Public Advisory Groupsandie.wellman@oncology.ox.ac.uk  
Oxford Patient Engagement Network for Arthritis and Musculoskeletal Conditions (OPEN ARMS)openarms@ndorms.ox.ac.uk louise.hailey@ndorms.ox.ac.uk
Patient and Public Involvement (PPI) in health: Register your interest — Nuffield Department of Primary Care Health Sciences, University of Oxfordppi@phc.ox.ac.uk    
PPI Advisory Group – NIHR Oxford Biomedical Research Centrerachel.taylor@ouh.nhs.uk  
Research Champions cora.reilly-mcgeown@ouh.nhs.uk comms.crnthamesvalley@nihr.ac.uk
Stroke Prevention Research Advisory Groupmary.sneade@ndcn.ox.ac.uk
The Oxford Blood Groupcatriona.gilmour-hamilton@ouh.nhs.uk oxfordbloodgroup@ouh.nhs.uk
Oxford Vaccine Centre PPI Group / Life-saving Vaccines Theme
ovc-ppi@medsci.ox.ac.uk
Weight Management Public Panelanisa.hajizadeh@phc.ox.ac.uk  
The Oxford Research Advisory Group (delirium)mary.sneade@ndcn.ox.ac.uk
Families for the Treatment of Hereditary MND (FaTHoM)elizabeth.gray@ndcn.ox.ac.uk
NIHR Musculoskeletal Trauma PPI Groupoxfordtrauma@ndorms.ox.ac.uk

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Training and support

Resources listed below provide information on training courses that are available for researchers or support of an individual nature.

OrganisationPurposeContact details
Learning for InvolvementOffer resources and training for researchers upcoming courses on their websitehttps://www.learningforinvolvement.org.uk/find-training/
NIHR Research Design Serviceoffer support for grant specific PPI through their request support servicehttps://www.rds-sc.nihr.ac.uk/request-support/
NIHR School for Primary Care ResearchList training opportunities here including non NIHRhttps://www.spcr.nihr.ac.uk/PPI/resources-for-researchers/training-for-involvement-and-engagement

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Recruitment websites

These websites are used by researchers to recruit Patient & Public Involvement contributors. 

OrganisationCoverageContact details
NIHR Oxford BRC PPI mailing listCovers the Thames Valley run by BRC Oxford. 200+ people signed up to weekly email bulletin. People not registered can see opportunities here toohttps://oxfordbrc.nihr.ac.uk/ppi/researchers-post-opportunities/  
People in ResearchNational and run by NIHR.http://www.peopleinresearch.org/
Voice GlobalUK and international, with public, patients and carers who contribute to researchhttps://www.voice-global.org/  

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Organisations supporting PPI in research, nationally

OrganisationPurposeContact details  
James Lind Alliance  Brings patients, carers and clinicians together in Priority Setting Partnerships to identify top 10 unanswered questions about effects of treatment.  https://www.jla.nihr.ac.uk/    
Health Research Authority NHSThe HRA protects and promotes the interests of patients and the public in health and social care research.https://www.hra.nhs.uk/  
Healthtalk  Provides online information about health issues, by sharing people’s real-life stories collected by academic researchers. Includes experiences on PPI.PPI Contributor’s views   Researchers’ views  
Medical Research Council Clinical Trials Unit -UCL  Focus on infectious diseases and cancer, and the translation of scientific research into patient benefits. Designs and conduct innovative and challenging clinical trials with public involvementhttps://www.ctu.mrc.ac.uk/    
McPin Foundation  Focuses on mental health research by putting the lived experience of people affected by mental health problems at the heart of research methods and the research agenda.https://mcpin.org/about-us/our-vision-and-beliefs/  
NIHR  Section on engagement and participation in research for professionals emphasising the need for involvement.https://www.nihr.ac.uk/health-and-care-professionals/engagement-and-participation-in-research/  
Shaping Our Lives  National organisation and network of 430 + user-led groups, service users and disabled people committed to inclusive involvement and specialise in the research and practice of involving diverse communities in policy, planning and delivery of services.https://www.shapingourlives.org.uk/  

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Funding opportunities supporting PPI in research

OrganisationScheme Link
NIHR – Research Design Service South CentralRDS provides design and methodological support to researchers applying for funding from NIHR and other national funding programmes, including help with planning and developing a PPI strategy for your grant application. is available via RDS South Central which covers Oxford.
They have a small amount of funding for pre-submission PPI activities.
https://www.rds-sc.nihr.ac.uk/information-for-researchers/  

https://www.rds-sc.nihr.ac.uk/request-support/
NIHR- School for Primary Care ResearchSmall grants scheme will be live from 19th September 2022. Open to researchers in the NIHR School for Primary Care Research only.https://www.spcr.nihr.ac.uk/PPI/spcr-PPIE-funding-calls
Public Engagement team at the UniversityThe public engagement team list grant opportunities on their website which may be applicable for public involvement.https://www.ox.ac.uk/research/public-engagement/support-researchers  
National Coordinating Centre for Public EngagementThis funding is for public engagement which could support public involvement.Health and life sciences funding | NCCPE (publicengagement.ac.uk)

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< Previous: Section 4 – PPI in Practice

Post an opportunity for patient and public involvement

PPI RESEARCHER GUIDANCE

  • Section 1 – Foreword and Introduction
    • Foreword by Professor Gavin Screaton
    • Introduction
  • Section 2 – What is Patient and Public Involvement?
    • Patient and public involvement, engagement and participation definitions
    • Why involve the public in research?
    • Funding body requirements: NIHR, UKRI and Wellcome
    • Academic literature requirements
    • PPI strategies
    • Standards and best practice
    • Why patients and the public want to get involved
    • Involving people from diverse and ‘under-served’ groups
    • Ethical approval
    • Costing and funding patient and public involvement
  • Section 3 – PPI and the Research Pathway
    • The research cycle
    • PPI opportunities in the research pathway
    • Case studies across the research pathway
  • Section 4 – PPI in Practice
    • Recruiting patients and the public
      • Deciding who to involve
      • PPI groups and recruitment websites
      • Advertising for PPI contributors
      • Where to advertise
      • Template for advertisement for PPI contributor
    • Communicating with patients and the public
      • Writing in plain English
      • Social Media
    • Support and guidance for patients and the public
      • Role descriptions and interviews
      • Templates for working agreements
      • Induction and welcomes
      • Training and support for PPI contributors
      • Thanking and giving feedback to PPI contributors
      • Payment for PPI contributors
      • Benefits advice and support
    • Guidance for meetings and other PPI activities
      • Guidance for online meetings
      • Guidance for in-person meetings
      • Terms of Reference
      • Consent to share personal information
  • Section 5 – PPI Resources for Researchers
    • PPI leads and coordinators
    • PPI groups, Oxford
    • Training and support
    • Recruitment websites
    • Organisations supporting PPI in research, nationally
    • Funding opportunities supporting PPI in research

Public engagement for researchers

  • Public engagement for researchers
    • Public Engagement Case Study – Breathe Oxford at the Royal Society Summer Science Exhibition
    • Public Engagement Case Study – GenExpressID study: working with a patient interest group

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