- Section 1 – Introduction
- Section 2 – What is Patient and Public Involvement?
- Section 3 – PPI and the Research Pathway
- Section 4 – PPI in Practice
- Section 5 – PPI Resources for Researchers
Section 1 – Introduction
Public and public involvement (PPI) in health and social care is research being carried out ‘with’ or ‘by’ members of the public, rather than ‘to’, ‘about’ or ‘for’ them.
This includes, for example, working with research funders to prioritise research, offering advice or expertise as members of a project steering group, commenting on and developing research materials, undertaking interviews with research participants.
There is increasing evidence that health research conducted with PPI improves research and achieves better outcomes for patients.
Patient and public involvement (PPI) is probably a familiar term, but it may still cause confusion or concern. Researchers who helped develop this PPI Researcher Guidance requested a section called Don’t panic! This Guidance is very comprehensive and may feel like a huge ‘to do’ list, but please be reassured that you don’t need to include everything in it in your research project.
This Guidance has been created for health and medical researchers from Oxford, in general, with a National Institute for Health Research (NIHR) perspective. However, it is available to all researchers and the information is relevant for all funding bodies.
There are five sections. We recommend you read Section 2 which will give you an overview and then dip into the parts that are relevant. Each section contains links to further relevant information and advice.
The content has been produced by staff from NIHR Applied Research Collaboration Oxford and Thames Valley; NIHR Oxford Biomedical Research Centre; and the University of Oxford’s Nuffield Department of Primary Care Health Sciences.
We want these resources to be as useful as possible and will update them regularly so we would welcome your feedback and suggestions.
Polly Kerr (firstname.lastname@example.org), PPI Manager, Nuffield Department of Primary Care Health Sciences
Claire Schwartz (email@example.com), Programme and PPI Manager, NIHR Applied Research Collaboration Oxford and Thames Valley
Rachel Taylor (firstname.lastname@example.org), M: 07500 095526 Public and Community Involvement, Engagement and Participation Lead, NIHR Oxford Biomedical Research Centre
Angeli Vaid (email@example.com), Training and Inclusion Manager, NIHR Oxford Biomedical Research Centre