We are looking to recruit 6-10 people to be members of a steering group which will provide support for our research. We would like to recruit patients who have experience of cardiovascular disease, or people who have an interest in helping to improve the prevention of cardiovascular disease.
This steering group of patient panel members will lend their individual perspectives to guide how we prioritise research on the possible use of wearable sensors to better predict cardiovascular disease risk.
Atherosclerosis, the build-up of fatty material in the lining of artery walls, is a leading cause of heart attacks and stoke. Over the age of 40, people in general good health are invited to general practices (GPs) to measure their risk of developing atherosclerotic cardiovascular disease. However, most people with cardiovascular disease are identified too late and over 50% of major cardiac events are in patients who were not classified as high-risk during their GP visit.
Wearable sensors could potentially help as they can cheaply and painlessly measure cardiovascular disease risk in patients’ everyday lives. The possible inclusion of wearable sensors in future clinical practice would represent a transformative change in how we identify those at risk of cardiovascular disease. However, more evidence is needed to see if sensors can help us better identify people at risk of cardiovascular disease. Key questions include:
• Can future cardiovascular disease be predicted from activity trackers?
• Can future cardiovascular disease be predicted from wearable electrocardiogram (ECG) sensors?
• Is the prediction of cardiovascular disease improved by adding wearable sensor measurements?
We require a steering group of patient panel members to lend their individual perspectives to help us prioritise research on the possible use of wearable sensors to help predict cardiovascular disease. In particular we would value your input on:
• How would people feel about the collection and storage of wearable data?
• How practical would it be to embed wearable sensors in clinical practice?
• Would people like their cardiovascular risk score to be as understandable as possible, or as accurate as possible?
• Attend and contribute to a research steering group meeting three times per year in, or near to, Oxford
• Review documents concerning the design of the research in advance of steering group meetings
• Advise on research priorities, their study design, the interpretation of results, and their possible impact on clinical practice at the annual steering meeting
• You may be asked to provide advice by phone or email between meetings depending upon your availability and expertise.
• Interest in and commitment to improving health and social care
• Be able to maintain confidentiality
• Have the time to attend meetings and read documents beforehand
• Knowledge of experience of atherosclerotic cardiovascular disease e.g. ischaemic heart disease, ischaemic stroke, and peripheral arterial disease
• An understanding of the NHS
• An understanding of research processes and procedures
• Have access to a computer and e-mail
Members of this steering group will be unpaid as this project is just starting and does not yet have funding. However, travel expenses and out-of-pocket expenses will be reimbursed in accordance with the NIHR Oxford Biomedical Research Centre’s policy on reimbursement of expenses and involvement payments. Refreshments will be provided where appropriate.
We will ensure the provision of ongoing support that will be tailored to your individual needs. This will include:
• Advice and assistance from a dedicated point of contact
• Travelling expenses and subsistence
• Written guidance
The first meeting is likely to take place in March 2020.
Nuffield Department of Population Health, University of Oxford